Huntington's Community Connect - Recent Posts

RE: Huntington's Victoria Community Conference

Sue B — Sat, 25 Jul 2026 05:48:19 +0000

@sally

I look forward in catching up with you and all your family at the conference, Sally. Take care

RE: National Chocolate Day

Sally — Tue, 21 Jul 2026 06:04:59 +0000

I heard Tammy and the team lined up for free hot chocolate haha

RE: Huntington's Victoria Community Conference

Sally — Tue, 21 Jul 2026 06:03:48 +0000

Looking forward to seeing everyone! I will be there with my girls, husband and Grandma! :)

Huntington's Victoria Community Conference

Sue B — Sat, 11 Jul 2026 05:24:06 +0000

The Huntington's Victoria Community Conference is on again this year, 1st August 2026 10.30am till 3pm. The Topic this year is Living with Huntington's Disease and its impact on various facets of one's life. Whether you are new or familiar to the Huntington's Community this event is for everyone who is impacted by this disease. Contact Huntington's Victoria Information Team if you require any further information or you can book via the Events section on this page. I will be attending so come and say Hello on the day. Take care and Stay strong.

National Chocolate Day

Sue B — Tue, 07 Jul 2026 05:15:39 +0000

For all you sweet tooths, just letting you know it is World Chocolate Day today, so pop out and give yourselves a well earned treat. I'm off to get some chocs now. Have a lovely day.

May Awareness Wrap

Shreesha Venkateshwaralu — Tue, 26 May 2026 01:16:03 +0000

This entire month, our community showed up in blue, stood together, and celebrated what truly matters most — each other.

#GoBlueMay22 is more than an awareness campaign. It is a reminder that we are united in this race for a disease-modifying therapy for Huntington’s disease, while continuing to uplift one another and be a source of strength, hope, and support through every step of the journey.

To every community member, allied health professional, HD specialist, researcher, advocate, family member, and friend who made the effort to honour and acknowledge this community today, thank you. Your presence, compassion, and commitment mean more than words can express.

As one of our beautiful community members said: “For my mum, for myself and for the Huntington’s disease community", may we always remember what matters most, it is the idea that you are never alone. Thank you all for making this one of the loudest campaigns of the year!!

Give us a chance to thank you all, join us at the May Mingle event on the 29th of May 2026, get your tickets here - Book Now!

RE: Huntington's Disease Awareness Month 2026

Sue B — Tue, 26 May 2026 00:49:10 +0000

Just a reminder that May Mingle is happening this Friday. If you haven't purchased a ticket yet, and plan to come, I strongly suggest that you do it now. It's a great time to meet new people or catch up with old friends who have an understanding of the challenges that you may be facing. I'm going so hope to see you there

RE: Huntington's Disease Awareness Month 2026

Sue B — Fri, 08 May 2026 07:09:05 +0000

Thanks for the reminders of what is happening this month for May Awareness. I look forward in catching up with all who are going to the May Mingle event.

Huntington's Disease Awareness Month 2026

Shreesha Venkateshwaralu — Wed, 06 May 2026 06:32:40 +0000

May is here and with it, Huntington’s Awareness Month 💙

This month is about you. About coming together in whatever way feels right—whether you are living with Huntington’s disease, at risk, gene positive, a family member, a friend, or someone supporting the community through your work - You belong here!

#LightItUp4HD: Reach out to local businesses and government organisations to light buildings blue. If that’s not possible, we can help with signage or screen displays.

#GoBlueMay22: On May 22nd, 2026, join the “Blue Brigade” by wearing blue and showing your support.

#MayMingle: Wrap up the month with us on May 29th 2026, in Melbourne CBD for an evening of connection, food, and conversation.

Check out the video to find out how you can participate!

RE: Hello

Sue B — Wed, 01 Apr 2026 00:46:54 +0000

Hi Kylie,

Welcome back. If you have any questions or concerns, please feel free to ask here as there are NO Dumb questions.

Take care. Sue {blue}:face: