Join our Rare Disease Day thread, in preparation for the rare disease day on Feb 29th, 2024, and share your lived experiences with Huntington's Disease. Your stories are powerful tools for understanding and fostering support. Your experiences navigating the challenges of rare diseases like Huntington's can offer invaluable guidance and comfort to others facing similar journeys.
We are bound together by the collective need to shine a light on the often-overlooked struggles of rare disease families. Every story shared helps in this mission, creating a quilt of support that wraps around us all.
In sharing your story, you're not only offering help but also igniting hope for countless families seeking guidance and solace. Remember, our strength lies in unity, in staying together to uplift each other and bring attention to the unique challenges faced by rare disease families. Let's stand as a beacon of support and understanding. Your voice matters.
HCC is not a crisis service so if you require immediate support and/or feel in danger or unsafe, we recommend that you please contact 000 or one of the following crisis support services.
