Welcome to Huntington’s Community Connect!
This is a gathering for community members directly impacted by Huntington’s disease. Regardless of your status whether you are diagnosed with Huntington’s disease, at risk, gene positive, gene negative, a carer or friend, Huntington’s Community Connect is a safe space for you. Whatever your location, you can connect with others who have similar experiences and share stories, advice and guidance with each other.
Join now and be a part of Huntington’s Australia Community!
If you already have an account, please Log In.
Join the Conversation
Introduce yourself, connect with others, dive into the conversation, and find the support you need!
Get Involved
Find out how you can get involved with the Huntington’s Disease community.
Ask the Expert
Have a question for us?
Ask one of our experts at Huntington’s Victoria.
Contact Us
Need help or further information?
Find our contact details and more here.
Huntington’s Community Connect Update
This online peer forum is actively monitored and regularly updated to ensure it continues to meet the needs of the Huntington’s disease community, with insights and support from our peer leaders. Want to learn more? Watch the video or click the About HCC tab.
The Power of Sharing Your Story
Sharing difficult experiences is never easy, but this forum is a safe space where you can ask questions, get informed, and feel the support of the Huntington’s disease community. Within this community, we have many courageous individuals who have worked closely with Huntington’s Victoria to share their stories. While everyone’s journey has its ups and downs, the strength of a loving and supportive community is invaluable. These individuals have dedicated their time to highlight the power of sharing your story and how it can help you. We invite you to watch their stories and encourage you to ask questions or share your own experiences in this forum.
Read More
Information & Awareness Newsletter – November Edition:
All Things Grief with the Good Mourning Podcast
Click here
To ensure that the Huntington’s Disease Australia Community Connect (HCC) forum is clear and accessible for everyone, please posts in the relevant category.
If you are unsure where the best place would be for your post, please do not hesitate to ask one of our friendly peer leaders or Huntington’s Victoria staff for assistance.
Huntington’s Disease Australia Community Connect (HCC) is a moderated peer support space for Australian’s who are connected with Huntington’s Disease. It is monitored during business hours, 9am to 5pm AEST on weekdays, Monday to Friday so we are unable to respond to some reports or concerns immediately.
HCC is not a crisis service so if you require immediate support and/or feel in danger or unsafe, we recommend that you please contact 000 or one of the following crisis support services.
Faces of Our Community
