Welcome to Huntington’s Community Connect!

This is a gathering for community members directly impacted by Huntington’s disease. Regardless of your status whether you are diagnosed with Huntington’s disease, at risk, gene positive, gene negative, a carer or friend, Huntington’s Disease Australia Community Connect is a safe space for you. Whatever your location, you can connect with others who have similar experiences and share stories with each other.

Join now and be a part of Huntington’s Australia Community!

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The Power of Sharing Your Story

Sharing difficult experiences is never easy, but this forum is a safe space where you can ask questions, get informed, and feel the support of the Huntington’s disease community. Within this community, we have many courageous individuals who have worked closely with Huntington’s Victoria to share their stories. While everyone’s journey has its ups and downs, the strength of a loving and supportive community is invaluable. These individuals have dedicated their time to highlight the power of sharing your story and how it can help you. We invite you to watch their stories and encourage you to ask questions or share your own experiences in this forum.

Read More

Information & Awareness Newsletter – August Issue:

Mindfulness: Hygiene for the Mind

 Click here

Join the Conversation

Introduce yourself, connect with others, dive into the conversation, and find the support you need!

Get Involved

Find out how you can get involved with the Huntington’s Disease community.

Ask the Expert

Have a question for us?
Ask one of our experts at Huntington’s Victoria.

Contact Us

Need help or further information?
Find our contact details and more here.

To ensure that the Huntington’s Disease Australia Community Connect (HCC) forum is clear and accessible for everyone, please try your best to make any posts in their relevant category.

If you are unsure where the best place would be for your post, please do not hesitate to ask one of our friendly peer leaders or Huntington’s Victoria staff for assistants.  

Huntington’s Disease Australia Community Connect (HCC) is a moderated peer support space for Australian’s who are connected with Huntington’s Disease. It is monitored during business hours, 9am to 5pm AEST on weekdays, Monday to Friday so we are unable to respond to some reports or concerns immediately. 

HCC is not a crisis service so if you require immediate support and/or feel in danger or unsafe, we recommend that you please contact 000 or one of the following crisis support services.

Faces of Our Community