Welcome to Huntington’s Disease Australia Community Connect!

This is a gathering for community members directly impacted by Huntington’s disease. Regardless of your status whether you are diagnosed with Huntingtons’s disease, at risk, gene positive, gene negative, a carer or friend, Huntington’s Disease Australia Community Connect is the space for you. Whatever your location, you can connect with others who have similar experiences and share stories with each other.

Join now and be a part of Huntington’s Australia Community!

If this is your first time visiting this page, please Register here.

If you already have an account, please Log In.

 We’re excited to announce that the Information and Support team at Huntington’s Victoria will be sharing resources and information related to particular topics of interest for the Huntington’s Disease Australia Community Connect (HCC) community every month.

The information topics will be presented through our Information and Awareness Newsletters. It is our hope that Huntington’s Disease Australia Community Connect (HCC) forum members will find access to these resources beneficial and interesting.

Forum members will have the to provide feedback about these topic areas and information pieces, discuss issues with each other and offer  suggestions on ideas for future topics.

Information & Awareness Newsletter – March Issue:

The Power of Sharing Your Story

 Click here

The Power of Sharing Your Story

Welcome/Start here

A good place to start.
Here you can introduce yourself and find others who have joined our forum.

Carers, family & friends

Caring for a loved one?
do you know someone living with HD?

Get Involved

Find out how you can get involved with the HD community.

Health & Wellbeing

Strategies, techniques and advice to improve or maintain your health and well being.

Lived experience

Hear other people’s stories and tell your own.

New to HD

Don’t know where to start?
a place for people who are new to living with HD.

Ask the Expert

Have a question for Us?
Ask one of our experts at Huntington’s Victoria.

Contact Us

Need help? Further information?
Find our contact details and more here.

To ensure that the Huntington’s Disease Australia Community Connect (HCC) forum is clear and accessible for everyone, please try your best to make any posts in their relevant category.

If you are unsure where the best place would be for your post, please do not hesitate to ask one of our friendly peer leaders or Huntington’s Victoria staff for assistants.  

Huntington’s Disease Australia Community Connect (HCC) is a moderated peer support space for Australian’s who are connected with Huntington’s Disease. It is monitored during business hours, 9am to 5pm AEST on weekdays, Monday to Friday so we are unable to respond to some reports or concerns immediately. 

HCC is not a crisis service so if you require immediate support and/or feel in danger or unsafe, we recommend that you please contact 000 or one of the following crisis support services.

Faces of Our Community