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Events Huntington's Disease Awareness Month 2026

 
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ShreeshaV
 Shreesha Venkateshwaralu
(@shreeshav)
Posts: 6
Active Member Admin
Topic starter
 

May is here and with it, Huntington’s Awareness Month 💙

This month is about you. About coming together in whatever way feels right—whether you are living with Huntington’s disease, at risk, gene positive, a family member, a friend, or someone supporting the community through your work - You belong here!

#LightItUp4HD: Reach out to local businesses and government organisations to light buildings blue. If that’s not possible, we can help with signage or screen displays.

#GoBlueMay22: On May 22nd, 2026, join the “Blue Brigade” by wearing blue and showing your support.

#MayMingle: Wrap up the month with us on May 29th 2026, in Melbourne CBD for an evening of connection, food, and conversation.

Check out the video to find out how you can participate!


 
Posted : 06/05/2026 5:32 pm
Topic Tags
Huntington's Disease Awar May Awareness Month 2026 Advocacy matters
Sue B
 Sue B
(@sue-b)
Posts: 68
Member
 

Thanks for the reminders of what is happening this month for May Awareness. I look forward in catching up with all who are going to the May Mingle event.


 
Posted : 08/05/2026 6:09 pm
Sue B
 Sue B
(@sue-b)
Posts: 68
Member
 

Just a reminder that May Mingle is happening this Friday. If you haven't purchased a ticket yet, and plan to come, I strongly suggest that you do it now. It's a great time to meet new people or catch up with old friends who have an understanding of the challenges that you may be facing. I'm going so hope to see you there


 
Posted : 26/05/2026 11:49 am
ShreeshaV
 Shreesha Venkateshwaralu
(@shreeshav)
Posts: 6
Active Member Admin
Topic starter
 
This entire month, our community showed up in blue, stood together, and celebrated what truly matters most — each other. 💙
 
#GoBlueMay22 is more than an awareness campaign. It is a reminder that we are united in this race for a disease-modifying therapy for Huntington’s disease, while continuing to uplift one another and be a source of strength, hope, and support through every step of the journey.
 
To every community member, allied health professional, HD specialist, researcher, advocate, family member, and friend who made the effort to honour and acknowledge this community today, thank you. Your presence, compassion, and commitment mean more than words can express.
 
As one of our beautiful community members said: “For my mum, for myself and for the Huntington’s disease community", may we always remember what matters most, it is the idea that you are never alone. Thank you all for making this one of the loudest campaigns of the year!!

Give us a chance to thank you all, join us at the May Mingle event on the 29th of May 2026, get your tickets here - Book Now!

 


 
Posted : 26/05/2026 12:16 pm
Sue B reacted
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Topic Tags:  Huntington's Disease Awar (1) , May Awareness Month 2026 (1) , Advocacy matters (1) ,
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