Sue B
Sue B
@sue-b
Member
Joined: Mar 11, 2022
Last seen: Mar 17, 2025
Topics: 5 / Replies: 40
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RE: Introducing myself

Hi Beo, Welcome to the forum. Although there is no specific carer's support group, Huntington's Victoria has lots of information and resources avali...

2 months ago
Topic
Replies: 0
Views: 103
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RE: Looking for advice on supports

@frances that's great France. I look forward in meeting you and your lovely son in person as I will be there as well. Take care. {blue}:face:

4 months ago
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RE: Looking for advice on supports

@frances Hi Frances, My friend was linked with Huntington's Victoria for NDIS Support Co-ordination as they are the specialists in this field in ...

4 months ago
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RE: Looking for advice on supports

Hi Frances, Welcome to the forum. Please remember that you are not alone as this forum is here to assist, learn and give some guidance where possibl...

4 months ago
Topic
Replies: 1
Views: 68
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RE: Mindfulness Tips

I enjoy listening to flowing waterfalls, or river streams, and image myself sitting on a rock (no snakes around) and visualizing any negative thoughts...

7 months ago
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RE: Mindfulness Tips

These are excellent tips and well worth putting into practice. {blue}:inlove:

7 months ago
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RE: The Power of Sharing Your Story

Hi Carly, Ill be in the office on Monday after about 11am to 4pm and can come in on Wed after my staff meeting if that's ok. See you soon. {blue}:i...

1 year ago
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RE: The Power of Sharing Your Story

Hi Carly, I would be happy to share my story of caring for someone that had huntington's disease and has since gained her warrior wings and is watchin...

1 year ago
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RE: Hi everyone

Hi Jen, I also recommend that you check out the Huntington's Victoria website. On their front page under the header Huntington's Disease the have in...

1 year ago
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RE: Hi everyone

@jenclark Hi Jen, welcome to this forum. My friend went to see a genetic counsellor at the Victorian Clinic Genetic services which is based at the R...

1 year ago
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RE: Hi everyone

@laurac Hi Laura, Check out the Huntington's Victoria website. Under Huntington's Disease click on Predictive testing. This might help your husba...

1 year ago
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RE: can i contribute

Hi Tommy, Welcome to the HCC forum. Any contribution is more than welcomed no matter where you are from. Take care Sue

1 year ago
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RE: Symptoms starting?

Hi Ryan, Also check out the Huntinton's Victoria website as they hsve lots of resouces. You can even give them a call. Take care

1 year ago
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