NegativeNellie
NegativeNellie
@negativenellie
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Joined: Mar 22, 2022
Last seen: Jan 23, 2023
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About Me

My mum has HD. My sister and I have both tested negative. We are our mums only family support.

I have never really met anyone who has heard of HD (outside of our family), let alone know anyone who knows anyone who has HD. I have felt pretty alone in this journey besides the support of my mums social/support workers, who are amazing.

I am a mum of 2 children, both with special needs. I am currently working part time but am soon leaving work as my children and mum need more support at this time.

It's hard not having had people who could relate to our situation and journey with HD and I'm hoping to connect with some people who understand how hard this can be.

Location

Timezone

Australia/Melbourne

Occupation

Office Lady
Social Networks

HCC is not a crisis service so if you require immediate support and/or feel in danger or unsafe, we recommend that you please contact 000 or one of the following crisis support services.