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Events Community Conference 2025

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Sue B
(@sue-b)
Posts: 68
Member
Topic starter
 

The Huntington's Victoria Community Conference is on this Saturday 28th June from 10am to 2pm. If you havent registered already I would definately recommend that you do, as the focus for this conference is about up to date Research as well as trials that are currently happening. Check out the hdvic website for further information.

I hope to see you all there.

Take care and stay strong. Inlove  


 
Posted : 23/06/2025 4:46 pm
Phil_
(@phil_)
Posts: 1
New Member
 

Hi team,

Thank you for all your hard work in putting together the Community conference. I found all the presentations extremely helpful, and it was equally valuable meeting the HV team, researchers, and other families and carers.

For anyone reading this, it’s definitely something to add to your calendar, and I hope you continue with the event each year.


 
Posted : 02/07/2025 12:47 pm
Sue B
(@sue-b)
Posts: 68
Member
Topic starter
 

Welcome to the forum Phil. I totally agree with your comments. The Community Conferernce was amazing. Big thanks to Tammy and all at hdvic for organisings this very informative event. It definately gave me alot of HOPE.

For anybody that may have missed this event , please check out the hdvic website as they will be posting all the interviews from the conference on their website in the near future.


 
Posted : 11/07/2025 5:40 pm
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