Along with telling others about HD, it can also be a challenge for loved ones to talk about HD with close family and friends who may be at risk or affected by HD.
This short clip from our 2020 community conference may provide some insight and understanding into this.
Thankyou to JoAnne for speaking at our conference and allowing us to use this clip on the forum.
For the extended version of this video and further discussion about having the conversation about HD, please refer to our archive of the 2020 HV conference here:
Community Conference 2020 Archive | Huntington's Victoria (huntingtonsvic.org.au)
Feel free to join the conversation around the difficulties discussing HD or any other talking points about the dialogue of HD below this post.
- Josh