Research has shown that people living with HD, either at risk, gene positive or diagnosed can help reduce the impact of HD symptoms and delay the progression of the disease by staying socially, physically and mentally active.
Can you share any quick tips on how you are keeping yourself active to live well with HD?
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There maybe questions around the level, timing and variety of encouragement given by carers and friends to assist people with HD to live well.
For example, a person with HD may keep a physical calendar to populate, update and reflect on when they feel like doing so.
Information in the calendar does not only have to be appointments, birthdays etc but also details of day to day activities.
Appropriate encouragement can be given to assist with on going and sustainable positive outcomes.
I have also heard that physical calendars and notepads on the fridge or kitchen table are great for keeping track of not only dates and plans, but day to day activities and intention.
They are really valuable for assisting with memory and planning and also provide an insight for carers and friends to what's happening around the house!
Great idea and advice!
My Friend Lynne had a large whiteboard on her loungeroom wall and I had it set up in sections ie: which carers on each day, appts, activites, messages from Lynne to pass on and favourite tv shows. It was a fantistic resource not only for Lynne but especially for the new carers.
HCC is not a crisis service so if you require immediate support and/or feel in danger or unsafe, we recommend that you please contact 000 or one of the following crisis support services.
