Sue B
Sue B
@sue-b
Member
Joined: Mar 11, 2022
Last seen: Aug 12, 2026
Topics: 12 / Replies: 55
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RE: The Power of Sharing Your Story

Hi Carly, Ill be in the office on Monday after about 11am to 4pm and can come in on Wed after my staff meeting if that's ok. See you soon. {blue}:i...

3 years ago
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RE: The Power of Sharing Your Story

Hi Carly, I would be happy to share my story of caring for someone that had huntington's disease and has since gained her warrior wings and is watchin...

3 years ago
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RE: Hi everyone

Hi Jen, I also recommend that you check out the Huntington's Victoria website. On their front page under the header Huntington's Disease the have in...

3 years ago
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RE: Hi everyone

@jenclark Hi Jen, welcome to this forum. My friend went to see a genetic counsellor at the Victorian Clinic Genetic services which is based at the R...

3 years ago
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RE: Hi everyone

@laurac Hi Laura, Check out the Huntington's Victoria website. Under Huntington's Disease click on Predictive testing. This might help your husba...

3 years ago
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RE: can i contribute

Hi Tommy, Welcome to the HCC forum. Any contribution is more than welcomed no matter where you are from. Take care Sue

3 years ago
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RE: Symptoms starting?

Hi Ryan, Also check out the Huntinton's Victoria website as they hsve lots of resouces. You can even give them a call. Take care

3 years ago
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Answer to: Symptoms starting?

Hi Ryan, I'm not a medical person so I can only offer suggestions. Are you linked in with a HD doctor. If not I would suggest that you ask your gp f...

3 years ago
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RE: Balancing care and life

Hi Gemma, Are you the primary carer. Do you have any other supports/ services that assist with the care. If so, use them to enable you to do things...

3 years ago
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RE: Hi everyone

Hi Laura, Welcome to this forum. Please remember that you are not alone and I discovered that no question is a dumb question. I had never heard of...

3 years ago
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RE: Coping with Christmas

@natjev Thanks Nat, We both had a fabulous day. Kiera was at Luna Park and I hope to bring her to the Dance for HD. Hope you had a great xmas as well....

4 years ago
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RE: Coping with Christmas

Thanks for the great advice Katie and Nat. I wish you both a very Merry Christmas filled with lots of fun, love and laughter. This will be my 2nd ye...

4 years ago
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