Sue B
Sue B
@sue-b
Member
Joined: Mar 11, 2022
Last seen: Aug 12, 2026
Topics: 12 / Replies: 55
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RE: Supporting HD loved one in move from low care to High Care Nursing Home

I would first discuss with the person as to the possibility of seeking more supports which may include appropriate accommodation. Assuming the person ...

4 years ago
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RE: The Basics of Huntington's Disease

Thanks for sharing this poster, Azena. I will be giving this to Kiera's support workers so that they have some understanding of this disease.

4 years ago
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RE: Supporting young people at risk

Hi Sally, Are they aware of the hdyo site. I believe this is a fantastic site especially for kids and teens. Take care

4 years ago
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RE: Useful Tools we have found so far

Wow, KitKat, that's amazing and so helpful. Thanks for sharing these resources.

4 years ago
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RE: Hi There

Hi Trina, Welcome to this group. I look forward in hearing about all the tech things that you and your husband are using to help maintain your rout...

4 years ago
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RE: In memory of your HD loved one

The other thing that I did in memory of my friend Lynne was to get 2 tattoos done. I spent time thinking about them first and asked for people's opini...

4 years ago
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RE: In memory of your HD loved one

Hi Sally, When my friend Lynne passed away about a week after her funeral, some of the support workers that couldn't attend her service (due to covi...

4 years ago
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RE: Community Day Conference 2022

I have just booked my ticket and looking forward to hearing about what research is happening at the moment. Im also looking forward in meeting lots of...

4 years ago
Forum
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RE: Living well with Huntington's disease

@pancake My Friend Lynne had a large whiteboard on her loungeroom wall and I had it set up in sections ie: which carers on each day, appts, activit...

4 years ago
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RE: HV Gala Ball!

Thanks Tammy and all that were involved in organising this fantastic event. I had a fabulous time meeting new people and dancing the night away. I lef...

4 years ago
Forum
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RE: Huntington's Disease in Media

@sally Hi Sally, its unfortunate that Neighnours is finishing up in Aug/Sep as it would have been interesting to see how that character (Chloe's) s...

4 years ago
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RE: Huntington's Disease in Media

The show Neighbours has a character Chloe who has tested positive to Huntington's disease but not symptomatic yet. Unfortunately Neighbours will cease...

4 years ago
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