Sue B
Sue B
@sue-b
Member
Joined: Mar 11, 2022
Last seen: Aug 28, 2026
Topics: 12 / Replies: 55
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RE: Telling people

Hi Brown Eyes, My friend Lynne was hesitant at first to tell people about the disease, but once she started showing physical symptoms, she would tel...

4 years ago
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RE: Lived experience

@negativenellie welcome to the forum. I have some understanding of what you and your sister are experiencing. My friend Lynne had this disease and r...

4 years ago
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RE: HV Gala Ball!

Got my tickets, now have to find a new outfit to wear. Am very much looking forward in attending my first HD ball. Looking forward in meeting you all ...

4 years ago
Forum
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RE: What strategies have you put in place to look after yourself during the COVID Pandemic?

During the lockdowns my friend Lynne was unable to attend any of her AA meetings in person, so, if I wasnt with her for a meeting I showed some of her...

4 years ago
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RE: Please tell us about your current role in the life of a person with HD and if you could share the most rewarding and/or challenging part of your role?

My most challenging part was after my friend had tested positive. She was only on antidepression medication at the time. It was her anger outbursts wh...

4 years ago
Topic
4 years ago
Replies: 3
Views: 546
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RE: Meet your HCC peer leaders!

Hi, my name is Sue. I never knew anything about Huntington's disease until I met my friend at a personal development course approx 24 years ago. I hav...

4 years ago
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