Sally
Sally
@sally
Member
Joined: Feb 10, 2022
Last seen: Feb 6, 2024
Topics: 4 / Replies: 21
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RE: Diagnosed and symptoms

Hi natjev, The onset of symptoms is dependent on your CAG repeat as Huntington’s disease is caused by a fault on one of these genes – the huntingtin g...

1 year ago
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RE: In Memory - Remembrance Service

Thanks Serena, this service is a nice way to remember our loved ones lost. We have added Mum to the scroll this year ❤️

2 years ago
Forum
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RE: HD new drug trial

I hadn't seen this one, but I'm always very interested to hear the latest trails and treatments, and the hope it brings to the HD community!

2 years ago
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RE: Hi There

@kitkat Wow they are some awesome strategies! I will defiantly be keeping those in mind for our household!!

2 years ago
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RE: Supporting young people at risk

@sue-b Thanks Sue, this is a great suggestion!

2 years ago
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Replies: 2
Views: 216
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RE: Hi There

Welcome Trina!I'd love to know more about the Tech you guys use to help, sound very interesting! Happy Monday!

2 years ago
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RE: Being Young in a HD family

This is a fantastic resource. I remember what it was like growing up as a chid in a HD household. It was scary and stressful at times, and this wou...

2 years ago
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RE: In memory of your HD loved one

@sue-b thanks for your reply Sue! They all sound like great ideas, Mum always loved her food & drinks, too!

2 years ago
Topic
Replies: 3
Views: 398
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RE: Huntington's Disease in Media

SPOILER ALERT! Another to add to the list... Virgin River on Netflix! I'll be interested to see how this storyline plays out!

2 years ago
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RE: Community Day Conference 2022

@sue-b I've booked our tickets too, looking forward to seeing you! ?

2 years ago
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