Sally
Sally
@sally
Member
Joined: Feb 10, 2022
Last seen: Jul 21, 2026
Topics: 4 / Replies: 24
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RE: National Chocolate Day

I heard Tammy and the team lined up for free hot chocolate haha

1 month ago
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RE: Huntington's Victoria Community Conference

Looking forward to seeing everyone! I will be there with my girls, husband and Grandma! 🙂

1 month ago
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RE: choc-ing for a cause

This would have to be my second favourite event behind the Gala!! Wonderful to get to hang out with so many wonderful friends in the community and bes...

10 months ago
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RE: Diagnosed and symptoms

Hi natjev, The onset of symptoms is dependent on your CAG repeat as Huntington’s disease is caused by a fault on one of these genes – the huntingtin g...

3 years ago
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RE: In Memory - Remembrance Service

Thanks Serena, this service is a nice way to remember our loved ones lost. We have added Mum to the scroll this year ❤️

4 years ago
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RE: HD new drug trial

I hadn't seen this one, but I'm always very interested to hear the latest trails and treatments, and the hope it brings to the HD community!

4 years ago
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RE: Hi There

@kitkat Wow they are some awesome strategies! I will defiantly be keeping those in mind for our household!!

4 years ago
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RE: Supporting young people at risk

@sue-b Thanks Sue, this is a great suggestion!

4 years ago
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Replies: 2
Views: 648
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RE: Hi There

Welcome Trina!I'd love to know more about the Tech you guys use to help, sound very interesting! Happy Monday!

4 years ago
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RE: Being Young in a HD family

This is a fantastic resource. I remember what it was like growing up as a chid in a HD household. It was scary and stressful at times, and this wou...

4 years ago
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RE: In memory of your HD loved one

@sue-b thanks for your reply Sue! They all sound like great ideas, Mum always loved her food & drinks, too!

4 years ago
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Replies: 3
Views: 854
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RE: Huntington's Disease in Media

SPOILER ALERT! Another to add to the list... Virgin River on Netflix! I'll be interested to see how this storyline plays out!

4 years ago
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